Rare72 is a collaborative event focused on identifying existing resources and gaps in the rare disease community. A Rare72 cycle has two major parts, the first three days or 72 hours, and the 42 days after.
The first 72 hours is a non-stop collaborative event during which participants from around the globe source the best available resources for the rare disease community in real-time. Wikis are built around specific rare disease topics and live online discussions take place. The goal is to identify the best available resources and highlight work already being done in the space to identify potential areas for collaboration.
The remainder of the cycle is dedicated to teams participating in our hackathon-style event. Each team selects a challenge/problem statement and works to develop a solution for that problem. Teams enjoy mentorship and networking opportunities throughout the event, then final presentations are made and a winner selected in each challenge area.
Welcome to Rare72, a virtual rare disease Hackathon! Rare72 is an exceptional opportunity for global stakeholders to come together and work on common challenges in the rare disease community.
Rare72 is open to those who are interested in innovation for the rare disease community and have an interesting project or other idea to develop within the scope of the challenges proposed.
Participation in Rare72 is open to individuals aged 18 or older.
You can apply individually or as a team of minimum 3 and maximum 5 people. If you are an individual applicant, you will be required to form into teams by the second day of the 5-day bootcamp, either on you own or with the help of the event organizers.
The jury will analyze and evaluate all works presented by the team according to the following evaluation criteria: a) Solution Fit, b) Innovation, c) Viability, d) Team & Delivery
The winning submissions will be selected by a jury made up of experts from the rare disease community and professionals such as VCs and business veterans.
Intellectual Property (IP) rights refers to patents, utility models, rights to inventions, copyright and related rights, trademarks and service marks, trade names and domain names, right in get-up, goodwill and the right to sue for passing off or unfair competition, rights in designs, rights in computer software, database rights, rights to preserve confidentiality of information (including know-how and trade secrets). It can also include any applications for (and rights to apply for and be granted) renewals or extensions of, and rights to claim priority from, and all similar or equivalent rights or forms of protection which subsist or will subsist, now or in the future, in any part of the world.
As a problem solver, if you would like to share intellectual property rights which may contribute to the value proposition of the solution, it will be advisable to consider getting appropriate legal advice prior to making any disclosures in your application.
Please be aware that Rare72 organizers will not require the disclosure of any confidential information or obligations of confidentiality from any individual or entity involved in the process.
Will I as Problem Solver retain my Intellectual Property rights?
Each Problem Owner has a preferred IP arrangement for their challenge, which is also reflected under the respective Problem Statement Terms.
After the selection of the team(s) into the deep mentoring phase and prior to the development of the POC/Prototype, the Problem Solver and Problem Owner can enter into a new agreement governing the terms of the POC/Prototype. If necessary, IP workshops can also be provided to guide Problem Solvers on IP arrangements.
Applicants are strongly encouraged to read through the specific terms and conditions of each problem statement before applying.
What Intellectual Property rights will Problem Owners have?
Problem Owners have to acknowledge the Problem Solver ownership of IP rights, and all IP created from Problem Solver’s work on the Problem Statement is to be owned by the Problem Solver. However, Problem Owner may propose IP and exclusivity positions with the selected team(s) before proceeding further into the deep mentoring phase which may include development, testing and evaluation of the solution proposed.
General IP Guidelines
The background IP (for eg. datasets, information and materials) provided by the Problem Owner will belong to the problem statement owner. The Problem Owner may require the Problem Solver to sign a Non-disclosure agreement before the release of such background IP.
The background IP proposed and/or provided by the Problem Solver will reside with the Problem Solver as this is what they bring forward as part of their application and participation in the digital water hackathon.
Any technology/product development that may result in the creation of foreground IP will be undertaken by the Problem Owner and Problem Solver.
Yes, we do!
We host a pre-event webinar in September to provide an overview of the process, then a bootcamp prior to the launch of the cycle on January 17th.
The 5-day bootcamp is a virtual event with the intent to help individual applicants to form teams to build their solution value proposition.
We also provide teams with mentors throughout the process with access to additional networking opportunities for team members.
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