Rare72 is a collaborative event focused on identifying existing resources and gaps in the rare disease community. A Rare72 cycle has two major parts, the first three days or 72 hours, and the 42 days after.
The first 72 hours is a non-stop collaborative event during which participants from around the globe source the best available resources for the rare disease community in real-time. Wikis are built around specific rare disease topics and live online discussions take place. The goal is to identify the best available resources and highlight work already being done in the space to identify potential areas for collaboration.
The remainder of the cycle is dedicated to teams participating in our hackathon-style event. Each team selects a challenge/problem statement and works to develop a solution for that problem. Teams enjoy mentorship and networking opportunities throughout the event, then final presentations are made and a winner selected in each challenge area.
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